Living Well with MS

The National Multiple Sclerosis Society, on its organizational website, includes both written profiles and short videos about people who are invested in the theme of “living well with MS.” The text stories are short profiles, and are organized into categories, such as “Life With MS,” “Shakers” (advocates’ stories), and Seekers (stories about researchers). The videos are <30 seconds, and feature individuals with MS describing their strategies for living well with the disease.

Stories URL: http://www.nationalmssociety.org/Living-Well-With-MS/Personal-Stories
Organization or Project Description: About the National MS Society
First Stories Posted: 2013
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Patient Voices

Patient Voices aggregates the stories produced by in workshops run UK-based Pilgrim Projects, a consulting organization that works with health care providers and recipients to “use video, audio, still images and music to convey patients’, carers’, practitioners’ and managers’ own stories in a unique way.” The stories are produced using the digital storytelling methodology.

Stories URL: http://www.patientvoices.org.uk/stories.htm
Organization or Project Description: About Patient Voices
First Stories Posted: 2006
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1 in 3

The 1 in 3 campaign takes its name from the statistic that 1 in 3 women will have an abortion during their lifetime. It collects written and video testimonials by women who have had abortions, and describes its rationale as so: “By encouraging women who have had abortions to end their silence, share their stories, and start a new and more personal conversation about abortion in our society, the 1 in 3 Campaign will help create a more enabling cultural environment for the policy and legal work of the abortion rights movement.” The campaign is a project of Advocates for Youth, an organization focused on reproductive and sexual health for young people in the US and globally. The written stories are aggregated into a book.

Stories URL: http://www.1in3campaign.org/en/
Organization or Project Description: About the Project
First Stories Posted: 2014
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Generation Five

Generation Five, a volunteer collaborative, that seeks a Transformative Justice approach to ending child sexual abuse, hosts a small collection of digital stories on their website. The stories, all personal narratives by survivors of abuse or their allies, were produced by Silence Speaks. These are all well-crafted and intense examples of digital stories.

Stories URL: http://www.generationfive.org/resources/digital-stories/
Organization or Project Description: About Generation Five
First Stories Posted: 2013
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Stories of the Girls

This breast cancer awareness and support campaign by Advocate Health Care group features first-person videos by patients. The videos encourage women to take preventative steps against breast cancer and relay details and wisdom about women’s diagnosis and treatment. The videos are shareable, and are accompanied by a range of other campaign materials, including a hashtag and social media presence, as well as information about prevention and treatment.

Stories URL: http://www.storiesofthegirls.com/videos
Organization or Project Description: Stories of the Girls Campaign Home
First Stories Posted: 2013
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Stories of Hope

The American Cancer Society, under the “Find Support and Treatment” tab of its website, offers a collection of “Stories of Hope” from cancer survivors. The stories are written as profiles, and typically tell the story of a survivor’s diagnosis and treatment. The articles contain links to information relevant to the story, including cancer types, treatments, and side effects, and more relevant links are included in a static sidebar that appears next to each story.

Stories URL: http://www.cancer.org/treatment/survivorshipduringandaftertreatment/storiesofhope/
Organization or Project Description: American Cancer Society Support and Research Page
First Stories Posted: 2010
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Clinical Research Trials and You

The National Institutes of Health features a collection of stories on their website by people who have participated in clinical trials. The stories vary in media (some are written, many are video, one is audio), and also vary in production quality, with some professionally shot mini documentaries and other fairly basic interview videos and written profiles. The stories demystify clinical trials and explain the health and other benefits that come from participating. Note that the volunteer stories are more personal than the researcher stories, which are lower on the linked page.

Stories URL: http://www.nih.gov/health/clinicaltrials/stories/
Organization or Project Description: NIH's Clinical Trials Page
First Stories Posted: 2013
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WTC Health Program

To raise awareness among lower-Manhattan residents and workers who fell ill or suffered physical or emotional harm as a result of the World Trade Center collapse, the CDC created video testimonials from those who received assistance from the World Trade Center Health Program. Each short video features an individual describing his or her symptoms and by which they came to the health program. Excerpts from many of the videos were combined into a collective story about the program.

Stories URL: http://www.cdc.gov/wtc/memberstories.html
Organization or Project Description: World Trade Center Health Program Home Page
First Stories Posted: 2013
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Banyan Tree Project

The Banyan Tree Project is described as “a national social marketing campaign to stop HIV/AIDS-related stigma in Asian and Pacific Islander communities.” The project is an initiative of the Asian and Pacific Islander Wellness Center, and many of the stories were created with funding of the CDC and the Office of Minority Health Resource Center. The site hosts over thirty digital stories, sortable by theme. Most stories are told in English, but several are told in the storyteller’s native language. The site also enables visitors to upload written testimonials, though there are few of these as of late 2014.

Stories URL: http://banyantreeproject.org/wp2014/stories-videos/
Organization or Project Description: Website of the Asian Pacific Islander Wellness Center
First Stories Posted: 2012
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I Had Cancer

I Had Cancer is an online community for people affected by cancer, including those who identify as survivors, fighters, and supporters. The project was initiated by Mailet Lopez, who before being diagnosed with breast cancer at age 33, had co-founded a digital design agency. Members of the community create a profile in which they write a bio and upload a personal photograph; they may also share a more in-depth testimonial in their “Journal” area, which is viewable only by those in the member’s “circle.” The project is an interesting example of online peer-to-peer education and support. It has received a good bit of press attention, and received a Webby Award in 2013 for the Best Community Website.

Stories URL: http://www.ihadcancer.com/
Organization or Project Description: About the Project
First Stories Posted: 2011
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